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Re: re: va help

Posted: Tue Aug 10, 2010 9:07 pm
by haze
i hear ya bro, i really do. thought that the va was supposed to be easing up on this stuff. how do they expect us to keep track of everything???........oh.........thats it !!!!!!! they know that we did"nt , haven"t been able to keep up. hell, thats the way thats its always been with the va.
pisses me off to know end , when they your messed up, an still question you .

Re: re: va help

Posted: Wed Aug 11, 2010 11:42 am
by lmsnh
Redfish, I feel your pain. That's why with my recent request for comp upgrade I have been saving everything on my computer. Any forms I fill out, letters I recieve I either save off the computer as a pdf or scan it in as a pdf. That way if anything disappears I can print it back or email it at a moments notice. I used to be a very organized person with my paperwork but now I forget to pay bills. It's a struggle....

VA help

Posted: Thu Aug 12, 2010 2:24 am
by delta197wife
That was some really great advice re saving everything to your computer. And to go one step further in case of computer problems, saving to a flash drive and storing in lock box would be a nice safeguard.

Although I am not the veteran in our household, we were married 6 months after he got home from the Gulf and we joke now that he was still glowing when we got married. But seriously, for some reason, I started showing signs of "Chronic Fatigue", "Fibromyalgia", and a host of other health issues a few years before my vet did. I do struggle with many of the same cognitive issues that you guys describe and I got some great advice from and Occupational Therapist on how to conserve energy and organize my home for maximum efficiency. Of course, I still lose things from time to time, but When I have triples of everything, I can still put my hands on at least 1 of what I need.

Never give up on your claims because each and every one of you deserve the assistance of the VA.

delta197wife

Re: re: va help

Posted: Thu Aug 12, 2010 8:21 am
by redfish
How is your husband? I think he makes 6 of us I've seen on here from the old 197th

Re: re: va help

Posted: Thu Aug 12, 2010 10:42 am
by FA1SGret
I keep a paper copy of EVERYTHING in 3" Three ring notebooks. Envelopes stapled to the pages, appointment notices, perscription stuff ... everything.

Re: re: va help

Posted: Thu Aug 12, 2010 11:09 am
by redfish
Wow, I'm way behind. I need to get organized....

Re: VA help

Posted: Thu Aug 12, 2010 1:50 pm
by lmsnh
delta197wife wrote:That was some really great advice re saving everything to your computer. And to go one step further in case of computer problems, saving to a flash drive and storing in lock box would be a nice safeguard.

Although I am not the veteran in our household, we were married 6 months after he got home from the Gulf and we joke now that he was still glowing when we got married. But seriously, for some reason, I started showing signs of "Chronic Fatigue", "Fibromyalgia", and a host of other health issues a few years before my vet did. I do struggle with many of the same cognitive issues that you guys describe and I got some great advice from and Occupational Therapist on how to conserve energy and organize my home for maximum efficiency. Of course, I still lose things from time to time, but When I have triples of everything, I can still put my hands on at least 1 of what I need.

Never give up on your claims because each and every one of you deserve the assistance of the VA.

delta197wife
Have you been tested? You are aloud to have your own test done.
See below link:
http://www.feddesk.com/freehandbooks/031703-8.pdf

Iknow guys, there I go throughing links aroung again....

Re: re: va help

Posted: Thu Aug 12, 2010 1:52 pm
by lmsnh
Obviously I'm having one of those days when I have forgotten how to spell.

Re: re: va help

Posted: Thu Aug 12, 2010 1:53 pm
by redfish
Lol go linky, go linky it's your birthday.

Seriously though it is a help!

Re: re: va help

Posted: Sat Aug 14, 2010 12:49 pm
by delta197wife
lil sis,

When I called the VA yesterday, they told me that they were not doing spouse exams anymore.

Thanks for the info though, I think I will find the exam form and have my family doc. do the Gulf War exam for me and send it to be included in the registry.

Re: re: va help

Posted: Sat Aug 14, 2010 9:49 pm
by haze
lately i"ve been thinking ( thats just scary!!!), after i got out almost 18 yrs. ago now. i went to the va to get ckecked out. i was thinking that was the gulf exam, but lately, i"ve wondered that maybe it was"nt. think i"ll call the va hospital, and ask if i"ve ever had it. my memory is real bad , lately i"ve been noticing myself double, triple and more rechecking to see if i did something, put something away etc...hell, i"m only 40 now, wondering why i"m getting this way.. might , need to tell the doc about it, getting a little worried to tell the truth.

Re: re: va help

Posted: Sun Aug 15, 2010 1:46 am
by delta197wife
Many of the medications to treat anxiety, depression and chronic pain can affect the memory. It is frustrating but somedays in our house we have to make a choice: being able to remember everything or treat the pain. Before I knew that the medications were responsible for some of my
"forgetter-ness" as my youngest daughter called it, I thought I was losing my mind. But now I know it's not permanently LOST, I just don't know where it is right now.

Re: re: va help

Posted: Sun Aug 15, 2010 11:51 pm
by xrammyx
haze wrote:lately i"ve been thinking ( thats just scary!!!), after i got out almost 18 yrs. ago now. i went to the va to get ckecked out. i was thinking that was the gulf exam, but lately, i"ve wondered that maybe it was"nt. think i"ll call the va hospital, and ask if i"ve ever had it. my memory is real bad , lately i"ve been noticing myself double, triple and more rechecking to see if i did something, put something away etc...hell, i"m only 40 now, wondering why i"m getting this way.. might , need to tell the doc about it, getting a little worried to tell the truth.
Holy shizzle, I am going thru the same thing, its sooooo dam weird I am so becoming forgetful like you said I recheck and recheck....well now that I am in cincy im getting my MRI on my brain to see what is going on finally after 20 years, but im about the same age as you 39 and this is the first time in my life where I am so worried that I am forgetting something and it drives me batty....im really glad that I got married last year, my wife helps me a lot, but its been a toll on me too..I hope that me and my wife make it...its been tough on me being married now after all those years of being alone...and still want to be alone sometimes...but I think i am getting help...we will see...

Re: re: va help

Posted: Sat Aug 21, 2010 10:03 pm
by lmsnh
When I went threw the registry in the 90's I participated in a study at the Boston VA. I went through Neuro-psych exams and they said that I have cognitive brain disfuntion. The doctor who headed up the study is Dr. Roberta White, she is part of the Gulf War Illness Commitee and is the assistant Dean at Boston University. She has been studying the effects of the neuro toxins we were e posed to during the war. Look up some of her research. If you can't find any of her writings let me know and I will email you some info. You're not going crazy and you're not alone. A large group of us were exposed to nerve agent and if you were up north where I was, it was more than once.

Re: re: va help

Posted: Sun Nov 28, 2010 3:37 am
by OnQuest
I just put in a claim for memory loss and got denied... then i did a notice of disagreement (NOD) a couple months ago. I of course didnt know how to show a connection to military service. The only thing that would be on record is the 6 plus times that ive missed VA appointments to show i have memory loss LOL. It doesn't seem that they find that pertinent though.

Is that what i should call it though ? memory loss or is there a better term for it?